Tag: axial spondyloarthritis
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The “If I Just” Spiral: How to Handle Emotions Around Treatment Escalation
The information shared in this post reflects my personal experience as a patient and board-certified patient advocate. It is not intended as medical advice and should not replace guidance from your own healthcare team. Through a thoughtful conversation with my amazing rheumatologist (they do exist!), it was decided that it was time for a biologic…
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12 Things I’ve Learned About Ankylosing Spondylitis (and Axial Spondyloarthritis)
While math and I are typically not friends, I’m going to throw some numbers at you: That is what it took to finally get answers and treatment for progressing lower back stiffness and pain that plagued me for nearly five years. I don’t think I slept through the night without cringing or gasping in pain…
Little Engine Patient Advocacy 