Tag: multiple sclerosis
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Quit Doing This One Thing in Your Medical Appointments
I used to think that if something was wrong with my health, I’d just go to the doctor, they’d figure it out, and I’d get better. Easy peasy. That belief lasted until 2019, when my body started glitching. Pins and needles, tingling, and patchy numbness in my hands and feet started one morning and wouldn’t…
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This One Mistake Could be Stalling Your Chronic Illness Journey
Quick storytime, friends. A real experience from one of my appointments. Neurology PA: I don’t understand why you are here. Me: I have been having progressing episodes of leg weakness for over a year. My neuromuscular neurologist did an EMG, but it was normal, so he no longer wanted to explore things with me. I…
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MSing the Mark: Sjögren’s Mimicking Multiple Sclerosis
Note: I am not a medical provider. Opinions in this article are based on my own research and personal experiences. Mission: Diagnosis (Again) In my original blog post, I wrote about the frustrating battle I had to a Hypermobile Ehlers Danlos diagnosis. Finally, providers moved away from MS and a generic label that never fit…
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MSing the Mark: Hypermobile Ehlers Danlos Syndrome Mimicking Multiple Sclerosis
Note: I am not a medical provider. Opinions in this article are based on my own research and personal experiences. Mission: Diagnosis After a particularly bad virus the month prior, I awoke to pins and needles in my hands and feet in April of 2019. The sensation was so intense that my feet felt numb…
Little Engine Patient Advocacy 