Tag: rare disease
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The Road Less Traveled: Navigating a Rare Disease Diagnosis
It took me five neurologists over five years to finally get diagnosed with my rare disease: seronegative myasthenia gravis (MG). MG is a chronic autoimmune disorder that messes with your neuromuscular junction, where your nerves meet your muscles. It causes muscle weakness and fatigue. It’s rare—affecting about 1 in 10,000 to 1 in 20,000 people…
Little Engine Patient Advocacy 