Tag: Sjogren’s Disease
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Welcome to Sjogren’s Awareness Month: Let’s Raise Our Voices (and Glasses of Water)
Hello, Sjogees! It’s April, which means it’s time for Sjogren’s Awareness Month. It’s a time where we get to share our stories, raise awareness, and have a little fun while doing it. Whether you’ve just been diagnosed, have been living with Sjogren’s for years, or are supporting someone on this journey, this month is all…
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Quit Doing This One Thing in Your Medical Appointments
I used to think that if something was wrong with my health, I’d just go to the doctor, they’d figure it out, and I’d get better. Easy peasy. That belief lasted until 2019, when my body started glitching. Pins and needles, tingling, and patchy numbness in my hands and feet started one morning and wouldn’t…
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Why the Name Change from Sjögren’s Syndrome to Sjögren’s Disease Is a Big Deal
Cue LL Cool J and my bad rapping and join me in chatting, “Don’t call it a syndrome!” Ok, bad pun out of the way… In 2024, the global Sjögren’s community dropped a truth bomb: they officially renamed Sjögren’s Syndrome to Sjögren’s Disease. And I, for one, couldn’t be more thrilled. At first glance, it…
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The Seronegative Struggle: Why It’s Harder to Get a Diagnosis (and What You Can Do About It)
If you’ve ever suspected an autoimmune disease but had normal labs, you’re not alone. Welcome to the seronegative struggle—a frustrating journey marked by delayed diagnoses, dismissed symptoms, and endless appointments. Seronegative means that your blood tests don’t show the antibodies commonly associated with a condition, despite clear symptoms. It’s a maddening limbo that leaves many…
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The One Thing Missing From Your Sjögren’s Care Plan (And It’s Not Another Supplement)
When it comes to managing Sjögren’s—or even suspecting you have it—you’ve likely heard the usual advice: tweak your diet, adjust your lifestyle, add supplements, and follow your medication plan. And yes, those things are important, but they’re not the whole picture. As someone who’s lived this life and spends her days immersed in Sjögren’s support…
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MSing the Mark: Sjögren’s Mimicking Multiple Sclerosis
Note: I am not a medical provider. Opinions in this article are based on my own research and personal experiences. Mission: Diagnosis (Again) In my original blog post, I wrote about the frustrating battle I had to a Hypermobile Ehlers Danlos diagnosis. Finally, providers moved away from MS and a generic label that never fit…
Little Engine Patient Advocacy 