Tag: chronic illness
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Why the Name Change from Sjögren’s Syndrome to Sjögren’s Disease Is a Big Deal
Cue LL Cool J and my bad rapping and join me in chatting, “Don’t call it a syndrome!” Ok, bad pun out of the way… In 2024, the global Sjögren’s community dropped a truth bomb: they officially renamed Sjögren’s Syndrome to Sjögren’s Disease. And I, for one, couldn’t be more thrilled. At first glance, it…
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This One Mistake Could be Stalling Your Chronic Illness Journey
Quick storytime, friends. A real experience from one of my appointments. Neurology PA: I don’t understand why you are here. Me: I have been having progressing episodes of leg weakness for over a year. My neuromuscular neurologist did an EMG, but it was normal, so he no longer wanted to explore things with me. I…
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Are You Medically Gaslighting Yourself?
Ever felt uneasy or unsure about your health journey? Patient insecurity is a real challenge many of us with chronic illness face, but awareness is key to overcoming it. After years of fighting to be heard by medical professionals — to be seen as more than a normal lab sheet, I developed patient insecurity that…
Little Engine Patient Advocacy 